Posts Tagged ‘jenny mccarthy’

Feeling Thankful, Part Two

November 25, 2008

As awful as it sounds, there are those days where I don’t feel particularly thankful for anything. I feel shortchanged and can get extremely jealous looking at other people who are living the life I thought I would. I know there are tons of people who have way more challenges than I do, but there is no question that my life would be so much easier if I didn’t have to deal with autism.

But one thing (or more accurately person) I am always thankful for is my wife. Now I’ll try not to get too mushy here, but our little family would be sunk without her. Fathers definitely play an important role in an ‘autistic family’ but as the title of the recent Jenny McCarthy book suggests, it’s the ‘Mother Warriors’ who are the ones getting things done.

Not convinced that my wife is a Superwoman? Well let’s see….she works a full-time job where she has lots of responsibility and expectations, she raises a 3-year-old which can be a challenge for anyone even before you add in the autism to the mix, she has to put up with me on a daily basis (no small feat), and keeps the house going, meals cooking, etc. 

I’ve seen her shine this past year since we received the autism diagnosis. She’d probably deny it and I know she feels like she’s always coming up short. But beneath that tired, worn-out exterior you can see a light in her that is shining so brightly. The biggest confidence I have in our hopeful recovery of our son is that my wife is in my life. She’s always scouring books and the internet to make sure we’re not missing anything that could help our son. She goes to the doctor appointments armed with a list of questions to make sure we’re addressing everything with the care our son gets.

And to top it all off, with the little free time she has she’s always searching for other Moms of autistic kids to connect with. It’s her sincere desire to be able to help those in need. At this point we’re far from experts, but with the year we’ve put in, we can certainly help others who are just starting out too. I have no doubt that when we recover our son, she’ll still be working tirelessly to help those other Moms who are scared and have no idea where to turn to for help.

I have no doubt too that someday she’ll write a book. She kind of laughs when I mention that now and we’ve had a few people mention that we should both write books someday. I certainly wouldn’t be against that but I know for a fact she has the drive, determination, and talent to see something like that through. I told her I’d be willing to write the foreward to the book if she needs me to do something.

So during this week of thanks, I just want to thank my wife. It’s been an emotionally, physically, and spiritually draining year, but without her they probably would have sent me off to the looney bin a long time ago. She’s definitely a ‘Mother Warrior’ and there are two guys in her house who love her very deeply (me & my son that is in case you weren’t following, we don’t have any other guys at our house).

Advertisements

New Jenny McCarthy Book Coming Soon

September 9, 2008

Just a quick heads-up on a book that is coming out soon that should be a great read for any parent of a child with autism or anyone who loves someone with autism.

On September 23rd, Jenny McCarthy is releasing “Mother Warriors: A Nation of Parents Healing Autism Against All Odds.” 

The official blurb I read on the internet describes the book as so…

“When Jenny McCarthy published Louder Than Words, the story of her successful efforts to save her son, Evan, from autism, the response was tremendous. It hit #3 on the New York Times bestseller list; and Jenny and Evan were featured on the covers of several magazines, including People. But what she hadn’t anticipated was the overwhelming response from other parents of autistic children, who sought her out to share their stories.

No two autistic children heal in exactly the same way. And in her new book, Jenny expands her message to share recovery stories from parents across the country. Mother Warriors, shows how each parent fought to find her own child’s perfect “remedy of interventions” and teaches parents how to navigate safely through the many autism therapies.

Along the way, Jenny shares her own journey as an autism advocate and mother as well as the progress of her son, Evan. Emotional and genuinely practical, Mother Warriors will inspire a generation of parents with hope.”

I already know my wife and I will breeze through this one quickly. The line in the description that really jumps out at me is, “No two autistic children heal in exactly the same way.” Unfortunately we’re learning that’s the truth. But it does give me great hope to know that obviously people are having success and that if one treatment doesn’t work, there could be another around the corner that will help your child make great strides.

When we heard Jenny speak at the Autism One Conference back in May, she mentioned this book coming out soon, but I was surprised to see it listed and coming in just a couple of weeks. I believe she also has a documentary that will be out before too long as well.

You can pre-order the book at your favorite website or go pick it up when it comes out on the 23rd. I really have to hand it to Jenny for using her platform as a celebrity to really bring so much awareness about autism. It’s hard enough to find the strength from day to day to just fight your own battles, but to be able to help so many others is truly a blessing.

Autism One Conference

May 28, 2008

No, I haven’t fallen off the face of the earth. My wife and I just returned from the recent Autism One Conference in Chicago. What a great experience this was for us.

It was almost overwhelming to be in a place where we were surrounded by fellow parents of autistic children…to be in a room with others who know exactly how we’re feeling and what it feels like to deal with the early days following the diagnosis.

My mind is still trying to process everything we learned and experienced there so I’m sure I’ll do some follow-up posts later, but here are a few highlights…

The Jenny McCarthy keynote speech was incredible. She was very inspiring and I like how she just kind of tells it like it is. At the end of her speech, they showed a trailer for an upcoming documentary that she’s involved with. I seem to recall at the end of the trailer they showed a website for her film, but at the moment I’m not having success recalling the website or finding it through google.

We went to a social they held one of the nights where we had the opportunity to chat with parents who are members of TACA which is a group that helps parents of autistic children. We were able to chat with people who have kids that are recovered or are recovering. There is no one-size-fits-all scenario when it comes to the different treatments you can do, but it was still good to hear that so many people are having success using the biomedical approach. Sometimes you hear stories of almost instantaneous recovery, but most of the parents told us it’s a slow and steady road, but that if you keep with it, you might be amazed how far your child will go.

I could list all the amazing sessions we sat through by some of the top doctors and minds that are trying to change the course of autism, but the names probably don’t mean much to anyone not affected by autism. I can just say that it was affirming to know that much is being learned about autism.

It was interesting to hear one of the speakers say that 10 years ago he used to go to autism conferences and it looked like a bunch of zombies were walking around…no one had any reason to be hopeful. But this speaker said that this year’s conference in particular was a revelation to him as he saw so many people walking around excited and that there was a real sense of hope and optimism in the air.

After sitting through the sessions and talking with other parents, I feel confident that we’re on the right track with our son. It’s going to take time, but I have a feeling that there are much brighter days ahead for us…and for countless other families that are in a similar situation.

It was also just a great chance for my wife and I to get away together for a few days. Many thanks to Grandma and ‘Pa for watching our little guy. It didn’t take long though (I’d say we were only gone for about 10 minutes or so) before we started wondering what our little guy was up to. It was sure nice to see his adorable little smiling face when we got back.